Feel free to browse this representative list of physicians working with CCHS patients around the world.
This is not an exhaustive list of physicians with CCHS expertise.
BIRMINGHAM
David J. Lozano, MD
Associate Professor, Pediatrics
University of Alabama School of Medicine
Children’s Hospital of Alabama
Division of Pulmonary Medicine
1600 7th Avenue South, ACC 620
Birmingham, Alabama 35233
Phone: 205-638-9583
BIRMINGHAM
Teresa Magruder, MD, MPH
University of Alabama School of Medicine
Children’s of Alabama
Division of Pulmonary Medicine
1600 7th Avenue South
Birmingham, AL 35233
Phone: 205-638-9583
Fax: 205-975-5983
LOS ANGELES
Thomas G. Keens, MD
Professor of Pediatrics, Physiology and Biophysics
Keck School of Medicine of the University of Southern California
Division of Pediatric Pulmonology
Children’s Hospital Los Angeles
4650 Sunset Blvd, Box #83
Los Angeles, CA 90027-6062
Phone: 323-669-2101
Fax: 323-664-9758
LOS ANGELES
Iris A. Perez, MD
Assistant Professor of Pediatrics
Keck School of Medicine
University of Southern California
Division of Pediatric Pulmonology
Children’s Hospital Los Angeles
4650 Sunset Boulevard, Box #83
Los Angeles, CA 90027-6062
Phone: 323-361-2101
PENSACOLA
Christopher Makris, MD
Pediatric Pulmonology
5153 N 9th Ave
Pensacola, FL
Phone: 850-505-4711
Fax: 850-505-4711
CHICAGO
David Gozal, MD
Chair and Professor of Pediatrics
Comer Children’s Hospital
University of Chicago
5841 S. Maryland Ave. MC 8000
Chicago, IL 60637
Phone: 773-702-4523
CHICAGO
Debra E. Weese-Mayer, MD
Center for Autonomic Medicine in Pediatrics (CAMP)
Lurie Children’s Hospital
225 East Chicago Avenue, Box 165
Chicago, IL 60611-2605
Phone: 773-880-8188
Fax: 773-880-8100
BOSTON
Umakanth Khatwa, MD
Attending Physician; Director of Sleep Laboratories,
Director of Aero-digestive Center
Pulmonary Program, Director of Primary Ciliary Dyskinesia Program
Instructor in Pediatrics, Harvard Medical School
Boston Children’s Hospital
300 Longwood Avenue
Boston, MA 02115
Phone: 781-216-2570
Fax: 781-216-2518
BOSTON
Thomas Bernard Kinane, MD
Pediatric Pulmonary
Massachusetts General Hospital
275 Cambridge Street, POB 275
Boston MA, 02114
Phone: 617-726-8707
Fax: 617-724-2803
VALHALLA
Allen J. Dozor, MD, FCCP, FAAP
Professor of Pediatrics and Chief Pediatric Pulmonology
Maria Fereri Children’s Hospital at Westchester Medical Center
New York Medical College
Valhalla, NY 10595
Phone: 914-493-7585
Fax: 914-594-4336
PHILADELPHIA
Olufunke Afolabi-Brown, MBBS
Pediatric Pulmonology
Children’s Hospital Of Philadelphia -Pulmonology
3401 Civic Center Blvd, Philadelphia, PA, 19104
Phone: (215) 590-3749
Fax: 215-590-3500
PHILADELPHIA
Dr. Jorge Mora, M.D.
Director, Adult Pulmonology
Penn Medicine
Penn Sleep Center
3624 Market St.
Philadelphia PA 19104
Phone: (215) 662-7772
PITTSBURGH
Dr. Patrick Strollo, M.D.
Director, Adult Pulmonology
UPMC
Department of Medicine
1218 Scaife Hall
3550 Terrace Street
Pittsburgh, PA 15261
Phone:412-802-8594
CHARLOTTESVILLE
W. Gerald Teague, MD
Division Head, Pediatric Respiratory Medicine
Pediatric Pulmonology
University of Virginia (UVA)
PO Box 800386
Charlottesville, VA 22908- 0386
Phone: 434-924-0408
SEATTLE
Maida Lynn Chen, MD
Pulmonary and Sleep Medicine
Seattle Children’s
OC.7.720 – Pulmonary
4800 Sand Point Way NE
Seattle, WA 98105
Phone: 206-987-2174
MILWAUKEE
Thomas B. Rice, MD, FCCP, FAAP
Professor of Pediatrics
Chief, Pediatric Pulmonary/Critical Care Division
Medical College of Wisconsin
Children’s Hospital of Wisconsin
9000 West Wisconsin Avenue
Critical Care Office MS #681
Milwaukee, WI 53226
Phone: 414-266-3360
Fax: 414-266-3563
MELBOURNE
James Tibballs, MD
Associate Professor, Deputy Director
Intensive Care Unit, Royal Children’s Hospital
Flemington Road
Parkville, Melbourne, Australia 3052
Fax: 61-3-9345-5221
SAO PAULO
Geraldo Lorenzi Filho, MD
Hospital das Clinicas-Sao Paulo
Universidade de Sao Paulo
Sao Paulo, Brazil
Phone: 55-11-2806179
SAO PAULO
Gustavo Antônio Moreira
Doutor em Ciências pela UNIFESP
Especialista em Pediatria e Medicina do Sono
Pesquisador do Instituto do Sono, São Paulo
Diretor Médico do Serviço de Ventilação Domiciliar
para Portadores de Doenças Neuromusculares
São Paulo, Brazil
Phone: 55-11-99614-4294
AARHUS
John Oestergaard, MD
Center for Sjældne Sygdomme (Center for Rare Diseases)
Aarhus University Hospital
http://www.auh.dk/
Phone: +45-7845-1418
E-mail: johnoest@rm.dk
PARIS
Ha Trang, MD
Robert Debre Hospital
48 Boulevard Serurier
75019 Paris, France
Phone: 33-1-400-32476
Fax: 33-1-400-34770
BOCHUM
Professor Marianne Schläfke, MD
Abteilung für Angewandte Physiologie
Ruhr-Universität Bochum
44780 Bochum
Germany
Phone: 0 234-322-4884
Fax: 0 234-321-4250
MUNICH
Professor Jochen Peters, MD
Klinikum Dritter Orden
Menzinger Str. 44
80638 Munich, Germany
Phone: +49-89-1795-2601 (Office)
Fax: +49-89-1795-2603
MUNICH
Dr. Matthias Frerick, MD
Klinikum Dritter Orden
Menzinger Str. 44
80638 Munich, Germany
Phone: +49-89-1795-2601 (Office)
Fax: +49-89-1795-2603
TEL AVIV
Yakov Sivan, MD
Professor of Pediatrics
Pediatric Pulmonologist, Pediatric Intensivist, Pediatric Sleep Specialist
Department of Pediatric Pulmonology, National CCHS Center, Safra Children’s Hospital, Sheba Medical Center
Tel Aviv University, Sackler Faculty of Medicine
Israel
Phone: +972-52-426-2020
E-mail: sivan@tauex.tau.ac.il
ERBA
Francesco Morandi, MD
Unita Operativa di Pediatria
Ospedale Sacra Famiglia
Via Fatebenefratelli 20
22036-Erba (CO)
Phone: 0-341-531220
Phone: 328-2736651
Florence
Raffaele Piumelli, MD
Meyer Children Hospital
Center for Sleep Disordered Breathing, SIDS, and CCHS
Viale G. Pieraccini 24
50139 Florence, Italy
E-mail: raffaele.piumelli@meyer.it
TOKYO
Hisaya Hasegawa, MD, PhD
Division of Neonatal Intensive Care
Tokyo Women’s Medical University Medical Center East
2-1-10 Nishiogu, Arakawa-ku, Tokyo 116-8567, Japan
Phone: +81-3-3810-1111
Website: www.twmu.ac.jp/DNH/mce/NICU/byouki.html
TOKYO
Yousuke Yamada, MD
Division of Neonatal Intensive Care
Tokyo Women’s Medical University Medical Center East
2-1-10 Nishiogu, Arakawa-ku, Tokyo 116-8567, Japan
Phone: +81-3-3810-1111
Website: www.twmu.ac.jp/DNH/mce/NICU/byouki.html
CAPE TOWN
Fiona Kritzinger, MD
Paediatrics & Paediatric Pulmonology
Christiaan Barnard Memorial Hospital
Suite 201, 87 Loop Street
Cape Town, South Africa
Phone: +27-21-422-1354
E-mail: drkritzinger@thrivingkids.co.za
MADRID
Geneticist Angel Campos-Barros, PhD
Institute of Medical and Molecular Genetics (INGEMM)
& Biomedical Research Network for Rare Diseases (CIBERER U753), ISCIII
Castellana 261
28046 Madrid, Spain
Phone: +34 91 2071010 x 254
E-mail: angel.campos@salud.madrid.org
MADRID
Maria Angeles Garcia-Teresa, MD
Paediatrics & Paediatric Intensive Care
Nino Jesus University Children Hospital
Calle Menendez Pelayo, 65
28009 Madrid, Spain
Phone: +34 91 5035914
E-mail: mariangeles.garcia@salud.madrid.org
STOCKHOLM
Professor Hugo Lagercrantz
Astrid Lindgren Children’s Hospital, Karolinska University Hospital
Solna, SE-171 76 Stockholm, Sweden
Phone: +46-8-517-700-00
Fax: +46-8-517-751-21
E-mail: hugo.lagercrantz@ki.se
STOCKHOLM
Associate Professor Miriam Katz-Salamon
Astrid Lindgren Children’s Hospital, Karolinska University Hospital
Solna, SE-171 76 Stockholm, Sweden
Phone: +46-8-517-724-31
Fax: +46-8-517-751-21
E-mail: miriam.katz-salomon@ki.se
UPPSALA
Anders Jonzon, MD
University Children’s Hospital, ing. 95 NBV
Department of Woman and Child Health, Pediatrics
018-611 5928 or 070-3147490
751 85 Uppsala, Sweden
E-mail: anders.jonzon@kbh.uu.se
BASEL
Juerg Hammer, MD
Head, Div. of Pediatric Intensive Care and Pulmonology
University Children’s Hospital Basel
Roemergasse 8
4005 Basel, Switzerland
Phone: +41-61-685-65-65
Fax: +41-61-685-50-59
SOUTHWEST ENGLAND
Professor Peter Fleming, MD
Institute of Child Health Education Centre Royal Hospital for Children
Upper Maudlin St.
Bristol BS2 8BJ
Phone: +44-0-117-928-5221
Fax: +44-0-117-928-5389
STAFFORDSHIRE
Martin Samuels, MD
Consultant Paediatrician
Academic Department of Paediatrics
North Staffordshire Hospital
Stoke on Trent, ST4 6QG UK
Phone: +44-0-1782-552662
Fax: +44-0-1782-713946
