Helpful Literature on CCHS: Some Sources to Get You Started

• Diaphragm Pacing without Tracheostomy in Congenital Central Hypoventilation Syndrome Patients
  keens-2016-diaphragmpacingwithouttrachcchs-diep-2015.pdf
• American Thoracic Society Statement on CCHS (2010) (PDF Publicly Available Online)
  http://www.thoracic.org/statements/resources/pldd/congenital-central-hypoventilation-syndrome.pdf
• Cardiac (and Other Care) Issues in CCHS
  http://rarediseases.org/rare-diseases/congenital-central-hypoventilation-syndrome/
• Study of 196 CCHS Patients: Their Issues and Care (by CCHS Network Founder, Dr. M. Vanderlaan)
  http://www.normanet.ne.jp/~cchs/PDF/Epidemiologic%20Survey%20of%20196%20Patients.pdf
• Phrenic Nerve Pacing in CCHS
  http://www.thoracic.org/patients/patient-resources/resources/diaphragm-pacing-online.pdf
  http://www.chla.org/diaphragm-pacing
  http://www.ncbi.nlm.nih.gov/pubmed/25598098
• Proceedings of the 4th International Conference on CCHS, Warsaw Poland, 2012
  http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4268904/
• Flying/Traveling With a Ventilator
  http://www.ventusers.org/edu/valnews/val17-3c.html
  http://www.miusa.org/resource/tipsheet/ventilators
  http://www.united.com/web/en-US/content/travel/specialneeds/disabilities/customer_ventilators.aspx