Posted Wednesday September 21, 2022 by Melinda Riccitelli

CCHS Day 2022: Casting a Light in the Dark


Over the past eight years, International CCHS Day has been a beacon of light, generating a surge of awareness and advocacy for our orphan disease. Like a firefly lighting up the night sky, we invite our community of families and supporters to help CCHS shine fiercely this CCHS Day, November 12th, 2022.

More Information to come!