Family Resources
Aaron's Tracheostomy Page
To help assure the highest quality home care for children with tracheostomies and to facilitate parent to parent networking and support
AboutFace
Our mission is to advocate on behalf of those touched by facial difference with peer connections, information, emotional support and opportunities to enhance their life circumstances.
Air Charity Network
Air Charity Network, formerly Angel FlightAmerica (AFA), provides access for people in need seeking free air transporation to specialized health care facilities or distant destinations due to family, community or national crisis.
American Academy of Pediatrics
We are committed to the attainment of optimal, physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
American Airlines Miles for Kids in Need
The Miles for Kids in Need program provides worldwide support for children and their families, as well as for organizations dedicated to improving the quality of life for children with needs for medical, educational, social services issues and/or for those that heighten public awareness of children's issues.
American Brain Tumor Association
The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.
American Music Therapy Association
The mission of the American Music Therapy Association is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services in a rapidly changing world.
Angel Flight
Our Mission: "Angel Flight, Inc. arranges free air transportation for needy patients and health care organizations by volunteers"
Angel Flight Central
Angel Flight Central's mission is to serve people in need by arranging charitable flights for access to health care and for other humanitarian purposes
ARCH National Respite Network
To assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.
Bandaids and Blackboards
The goal of this website it to help people understand what it is like to grow up with medical problems - from the perspective of the children and teens who are doing just that.
CADRE
The Center for Appropriate Dispute Resolution in Special Education (CADRE) works to increase the nation’s capacity to effectively resolve special education disputes, reducing the use of expensive adversarial processes
Canine Companions for Independence
Canine Companions for Independence is a non-profit organization that enhances the lives of people with disabilities by providing highly trained assistance dogs and ongoing support to ensure quality partnerships.
CareForce - Continental Airlines
To provide airline transportation to people who have to travel due to critical medical or personal situations.
Caring Bridge
CaringBridge brings together a global community of care powered by the love of family and friends in an easy, accessible and private way.
Centers for Medicare & Medicaid Services
To ensure effective, up-to-date health care coverage and to promote quality care for beneficiaries
Cherab Foundation, Inc.
The Cherab Foundation is a world-wide nonprofit organization working to improve the communication skills and education of all children with speech and language delays and disorders. Our area of emphasis is verbal and oral apraxia, severe neurologically-based speech and language disorders that hinder children's ability to speak.
Child Care Aware
A program of the National Association of Child Care Resource and Referral Agencies. The mission of Child Care Aware is to ensure that families have access to accurate, useful information about finding child care.
Children's Rare Disease Network
The Children’s Rare Disease Network will create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.
Children's Wish Foundation International
Children's Wish Foundation International, Inc. is an international organization that fulfills wishes for seriously ill children under the age of eighteen.
Chromosome Disorder Outreach, Inc.(CDO)
To provide support to parents of children born with rare chromosome disorders, gather together and share information, and to promote research and a positive community understanding of these disorders.
Delta Society
To improve human health through service and therapy animals.
Disability Scoop
At Disability Scoop you will find articles gathered from across the web providing everything you need to keep up to date.
Dream Factory
The Dream Factory grants dreams to children diagnosed with critical or chronic illnesses who are 3 through 18 years of age.
Families USA
Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, we have earned a national reputation as an effective voice for health care consumers for over 20 years.
Family to Family Health Information Centers
F2F HICs are nonprofit, family-staffed organizations that assist families of children and youth with special health care needs (CYSHCN) and the professionals who serve them.
Family Village
The Family Village is a web site for children and adults with disabilities, their families, and their friends.
Family Voices
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.
Flying with a Disability
Flying with Disability is a site designed to provide impartial information and advice to all disabled people around the world who travel by air.
Genetic Alliance
Genetic Alliance transforms health through genetics, promoting an environment of openness centered on the health of individuals, families, and communities.
HEATH Resource Center
To provide information for students with disabilities on educational disability support services, policies, procedures, adaptations, accessing college or university policies, procedures, adaptations, accessing college or university campuses, career-technical schools, and other postsecondary training entities
Hopeful Parents
Our kids have all kinds of special needs, mild to severe. Some of us grieve the loss of our children. We do the very best we can, which often takes a toll on us. We come here to share our feelings with other parents who understand. We're searching for every parent of a child with special needs. Are you hopeful, too?
LD OnLine
LDOnline.org is the world's leading web site on learning disabilities and ADHD, serving more than 200,000 parents, teachers, and other professionals each month.
Make a Wish Foundation of America
We grant the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy.
Miami Children's Hospital/Ventilation Assisted Camp (VACC Camp)
The Mission of VACC Camp is to bring campers together in the fun, friendly, happy setting where they have an opportunity to socialize with their peers, experience the acceptance of the greater community, and engage in activities that will help them realize their full potential as families and as individuals.
Midwest Assistance Dogs, Inc.
Utilize highly trained dogs to provide qualifed assistance
National Kids As Self Advocates (KASA)
KASA believes young people with disabilities will have control over their own lives and futures. We help this happen by teaching youth about their rights, giving peer support and training, and changing the systems that affect our lives to include us.
National Parks Access Pass
A free, lifetime pass - available to U.S. citizens or permanent residents of the United States that have been medically determined to have a permanent disability - that provides access to recreation areas managed by five Federal agencies.
Parent to Parent USA
Parent to Parent USA (P2PUSA) is a national non-profit organization committed to promoting access, quality and leadership in parent to parent support across the country. This site highlights statewide organizations that have parent to parent support as a core program and demonstrate a commitment to implementing evidence-based P2P USA endorsed practices.
Paws with a Cause
Paws With A Cause® trains Assistance Dogs nationally for people with disabilities and provides lifetime team support which encourages independence. PAWS® promotes awareness through education.
Pennies from Heaven
Helping families with the day-to-day expenses that can become overwhelming in the midst of medical crises.
Pro-Train Innovative Dog Training
Pro-Train is an organization of professional dog trainers dedicated to the training of top quality animals.
Sibling Support Project
The Sibling Support Project is a national project dedicated to the life long concerns of brothers and sister of people with special health, developmental, and mental health concerns.
Social Security Administration
Supplemental Security Income (SSI) is a cash assistance program funded and administered by the Federal Government. The program is authorized by Title XVI (Supplemental Security Income for the Aged, Blind, and Disabled) of the Social Security Act.
Special Child Exchange
Our goal is to assist by helping families locate necessary medical supplies and/or durable medical equipment that is not being utilized or has been outgrown and may possibly be available in our growing network of families, therapists, medical providers, and school districts.
Special Olympics International
Our mission is to provide year-round sports training and athletic competition in a variety of sports for children and adults with intellectual disabilities in order to create continuing opportunities for them to develop physical fitness, demonstrate courage, experience the job of achievement, be included in the community, build skills and make friends.
Starlight Children's Foundation
We help seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.
STOMP
STOMP is a federally funded Parent Training and Information (PTI) Center established to assist military families who have children with special education or health needs.
Sunshine Foundation
Sunshine Foundation's sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged and abused children ages three to eighteen, whose families cannot fulfill their requests due to the financial strain that the child's illness may cause.
Talking To Your Doctor
To provide informational videos on communicating with health care professionals
The Fathers Network
Our mission is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities.
The MORGAN Project
Our Mission is to provide support to parents/caregivers and act as a reference source for information, financial resources, used equipment exchanges, research and clinical studies, support groups, web links, etc. This will be done in the form of creating an interactive website, and monthly newsletters.
United Healthcare Children's Foundation (UHCCF)
UHCCF is a 501(c)(3) non-profit charity dedicated to facilitating access to medical-related services that have the potential to significantly enhance either the clinical condition or the quality of life of the child and that are not fully covered by the available commercial health benefit plan.
Wright's Law
To provide parents, educators, advocates and attorneys with accurate, reliable information about special ed law, education law, and advocacy for children with disabilities.