Media

Quotes: November 2016

[columnContainer border=”yes”] [column span=”span12″] Quotes: November 2016 The CCHS network sponsors a private CCHS Facebook page for families. This is a great resource to share

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Get Involved

[columnContainer] [column span=”span12″] Volunteer [/column] [column span=”span12″] It’s simple, our organization is run completely by volunteers, and without this group of committed families and patients

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CCHS NOW Registry

[columnContainer] [column span=”span12″] CCHS Network One World (NOW) Registry [/column] [column span=”span12″] “Our goal is for the 1 in 10 Americans with rare diseases, most

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Project Progress: NGS

[columnContainer] [column span=”span12″] Funded Research Projects [/column] [column span=”span12″] Next Generation Sequencing (NGS) Approach to Deepen into PHOX2B Mutations Mediated Pathogenesis and to Identify Drugs

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