We are reconfiguring our online prescence to better provide education, support, and information to
patients, professionals, and donors regarding Congenital Central Hypoventilation Syndrome (CCHS).
If you are a person or family with a new CCHS diagnosis, or if you have a CCHS diagnosis and
want to join us and other CCHS families in our network, please enter your email here and we
will assist you in registering with the CCHS Network: